Three weeks ago my 12 year old daughter woke up, ready for a routine Saturday. Going to gymnastics, seeing her friends, having dinner. On December 15th 2012 her world would never be routine again. By the end of the day she would be in agonizing pain and paralyzed from the neck down. Unable to move, speak, eat or even breath without a mechanical ventilator. She would go into respiratory arrest, and be admitted in critical condition to the children's hospital in Providence. No, she did not have an accident, or hurt herself. This was problem caused by a virus or bacteria. Nobody knows for sure, she is the only case in the world that has presented a full paralysis in this manner. Unique in a really terrible way.
Winston Churchill once said "If you're going through hell, keep going. " - it is hard to imagine the hell my daughter has suffered, from champion gymnast, honor student and secretary of her school government, to being unable to move, speak or eat or even breath, but she keeps going. I have chosen to write this because ignorance often abounds, and truth is rarely perceived. In the past three weeks I have learned more truth from Rhana, my daughter than I have in 62 years on this planet. I am referring to truth and perspective on the most granular of levels. Tomorrow my daughter may be able to take a sip of lemonade, something she has looked forward to for several weeks. A single sip of lemonade. Some would say, appreciate the sunset or a quiet walk in the park. I would say appreciate holding a cell phone, eating, being able to speak or move, being absent of pain and especially a sip of cold lemonade. All too often we are caught up in the minutiae of living, and we forget the blessings that we take for granted. My child would give up all the iPhones, iPads, summer vacations, wide screen TV's just to be able to speak.
Among the traits we all have in common none is stronger than our abhorrence of unfairness and injustice. From 9/11 to recent events in Connecticut, we all peer through the portal of immense devastation. But from the comfort of our homes, families and life, we never really think anything like that will happen to us. I never did.
Most of us live our lives in a state of want, I did. You probably do, its normal. Now I live in a state of gratitude, grateful that my child is alive, grateful to be able to move, to write this, to speak. This experience has taught me courage, strength and gratitude through my daughter. She can still smile, enjoys being read to, and fights every day to recover from her illness, never losing her positive attitude or her inner strength. She is truly an inspiration to all of us. It's hard to keep a positive attitude when we have a bad headache, let alone total paralysis. So let's reexamine our attitude towards life, and deal with things the way things are not as they might have been had this or that had been different.
Meanwhile, lets strengthen her outlook for recovery, by helping to solve the financial problems of this illness, and offering words of encouragement and inspiration. Help to give this beautiful 12 year girl, the hope she deserves, the inspiration she needs and the strength to endure this difficult journey. She is physically about as helpless as a human being can be, but mentally she is still strong. Most of us are not helpless physically, or financially, and I ask you to join me in her success, the future is far from hopeless and with your support and help we can, together, help ensure the best possible future for this amazing little girl. I am confident in your spirit, generosity and compassion Her website is:
www.rhanasjourney.com
Please visit it and help with your donation and or words of support